Long-Term Ventilation Research

    Long-term Ventilation Research

    Dale CM, Carbone S, Amin R, Amaria K, Varadi R, Goldstein RS, Rose L. A transition program to adult health services for teenagers receiving long-term home mechanical ventilation: A longitudinal qualitative study. Pediatr Pulmonol. 2020 Mar;55(3):771-779. doi: 10.1002/ppul.24657. Epub 2020 Jan 23. PMID: 31971666. https://pubmed.ncbi.nlm.nih.gov/31971666/

    Moola FJ, Moothathamby N, McAdam L, Solomon M, Varadi R, Tullis DE, Reisman J.  Telling My Tale: Reflections on the Process of Visual Storytelling for Children and Youth Living With Cystic Fibrosis and Muscular Dystrophy in Canada.  Int J Qual Methods. 2020 Jan; 19: 1-8. doi:10.1177/1609406919898917  https://journals.sagepub.com/doi/full/10.1177/1609406919898917
    Evans R, Catapano MA, Brooks D, Goldstein RS, Avendano M. Family caregiver perspectives on caring for ventilator-assisted individuals at home. Can Respir J. 2012 Nov-Dec;19(6):373-9. doi: 10.1155/2012/452898. PMID: 23248801; PMCID: PMC3603762. https://pubmed.ncbi.nlm.nih.gov/23248801/
    Rose L, McKim DA, Katz SL, Leasa D, Nonoyama M, Pedersen C, Goldstein RS, Road JD; CANuVENT Group. Home mechanical ventilation in Canada: a national survey. Respir Care. 2015 May;60(5):695-704. doi: 10.4187/respcare.03609. Epub 2015 Jan 13. PMID: 25587173. https://pubmed.ncbi.nlm.nih.gov/25587173/
     Rose L, McKim D, Katz S, Leasa D, Nonoyama M, Pedersen C, Avendano M, Goldstein R. Institutional care for long-term mechanical ventilation in Canada: A national survey. Can Respir J. 2014 November/December;21(6):357-362. doi: 10.1155/2014/538687. Epub 2014 Sep 3. PMID: 25184510; PMCID: PMC4266155. https://pubmed.ncbi.nlm.nih.gov/25184510/
    Rose L, Fowler RA, Goldstein R, Katz S, Leasa D, Pedersen C, McKim D; CANuVENT Group. Patient transitions relevant to individuals requiring ongoing ventilatory assistance: a Delphi study. Can Respir J. 2014 Sep-Oct;21(5):287-92. doi: 10.1155/2014/484835. Epub 2014 May 2. PMID: 24791254; PMCID: PMC4198230. https://pubmed.ncbi.nlm.nih.gov/24791254/
    Rose L, McKim D, Leasa D, Nonoyama M, Tandon A, Bai YQ, Amin R, Katz S, Goldstein R, Gershon A. Patterns of healthcare utilisation for respiratory complications of adults with neuromuscular disease: a population study. Eur Respir J. 2018 Sep 18;52(3):1800754. doi: 10.1183/13993003.00754-2018. PMID: 30139772. https://pubmed.ncbi.nlm.nih.gov/30139772/
    Rose L, McKim D, Leasa D, Nonoyama M, Tandon A, Bai YQ, Goldstein R, Amin R, Katz S, Gershon A. Respiratory health service utilization of children with neuromuscular disease. Pediatr Pulmonol. 2018 Oct;53(10):1378-1386. doi: 10.1002/ppul.24145. Epub 2018 Aug 21. PMID: 30129703. https://pubmed.ncbi.nlm.nih.gov/30129703/

    Louise Rose, Laura Watling, Raj Kohli, Carlos Bautista, Donna Renzetti, Monica Avendano & Roger Goldstein (2019) Transition program for ventilator assisted individuals from acute care to home, Canadian Journal of Respiratory, Critical Care, and Sleep Medicine, 3:2, 100-105, DOI: 10.1080/24745332.2018.1514674 https://www.tandfonline.com/doi/full/10.1080/24745332.2018.1514674

    Rose L, McKim D, Leasa D, et al. Trends in incidence, prevalence, and mortality of neuromuscular disease in Ontario, Canada: A population-based retrospective cohort study (2003-2014). PLoS One. 2019;14(3):e0210574. Published 2019 Mar 26. doi:10.1371/journal.pone.0210574 https://pubmed.ncbi.nlm.nih.gov/30913206/